It's been two years since my last post. On July 2, 2010, I had a confirmation that I have a rare neurological disease called Multiple Systems Atrophy (MSA). When I asked , "Is it time to get my affairs in order. My neurologist said, "Yes". It was on July 2, 2007 that I blogged about my recent fibromyalgia diagnosis. It's weird that I still am in denial and think I've been misdiagnosed.
What is MSA?
Multiple system atrophy (MSA) is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure such as fainting spells and bladder control problems, combined with motor control symptoms such as tremor, rigidity, and loss of muscle coordination.
Cure? There is no cure for MSA. Currently, there are no treatments to delay the progress of neurodegeneration in the brain. But there are treatments available to help people cope with some of the more disabling symptoms of MSA.
Prognosis? The disease tends to advance rapidly over the course of 9 to 10 years, with progressive loss of motor skills, eventual confinement to bed, and death. There is no remission from the disease. There is currently no cure.
Not good.
3 comments:
My heart goes out to you, Regina. I, too, was diagnosed with MSA about 4 months ago although I had been treated for PD since 2007. The rapidity that I advanced from early onset PD to a full blown case was an indicator that there was more to come. For much of a year (2009)I fought a losing battle with a very rare (and very painful) condition called Camptocormia (look it up). Just when I thought it couldn't get worse along came MSA-P. I have been told that one should never challenge "worse." Things can always get worse.
One more thing -- the generally accepted MSA community blog/forum is on Yahoo Forums (Shydraeger MSA).
Good luck, but, unfortunately, you're screwed -- as you put it yourself.
Scott
Hi there. My heart goes to you also as my mother recently passed away from MSA. I have lots of information and have been through the full array of symptoms so if there is anything I can do to support (e.g. info wise, just let me know.)
I was diagnosed in November 2007 with Parkinson's Disease. I have left side tremors, balance and gait issues and some non-motor symptoms: quiet voice, some cognitive decline, small handwriting. I am currently on Sinemet for tremors and Cymbalta for neuropathy related to diabetes and previous chemotherapy. It was on my 25th anniversary of surviving breast cancer that I got the PD diagnosis. I am 69, retired, single woman sharing a house with my sister. I like to read, quilt, and crochet. I have been reading up on PD. Until I read too much and it scares me. Then I put it away until I calm down and can research it some more. I need advice and some direction. I searched further, visited Parkinson’s websites, blogs. I find info about someone having the same symptoms. I was really determined. Fortunately for me, I stumbled on a testimony of someone who had Parkinson’s for several years and was cured through Herbal medication. I read awesome stories of people whose condition were worse. I was not a fan of Herbal Medication, because I once believed that they have not researched it enough. But due to numerous testimonies I was more than willing to try it…. I contacted Dr. Fabien, and I purchased the medicine and used just the way doctor instructed. Its a thing of joy to come back and make my review.. It became a miracle for me within 7 months. The herbal medication worked without any trace of side effects on I’m…. totally free. I have been cured for Parkinson’s. I was a shocking experience with the medicine. I never knew I will be free for Parkinson’s disease. Email dr.fabiencontantin@gmail.com or www.kunimeherbs.com
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