It's been two years since my last post. On July 2, 2010, I had a confirmation that I have a rare neurological disease called Multiple Systems Atrophy (MSA). When I asked , "Is it time to get my affairs in order. My neurologist said, "Yes". It was on July 2, 2010 that I blogged about my recent fibromyalgia diagnosis. It's weird that I still am in denial and think I've been misdiagnosed.
What is MSA?
Multiple system atrophy (MSA) is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure such as fainting spells and bladder control problems, combined with motor control symptoms such as tremor, rigidity, and loss of muscle coordination.
Cure? There is no cure for MSA. Currently, there are no treatments to delay the progress of neurodegeneration in the brain. But there are treatments available to help people cope with some of the more disabling symptoms of MSA.
Prognosis? The disease tends to advance rapidly over the course of 9 to 10 years, with progressive loss of motor skills, eventual confinement to bed, and death. There is no remission from the disease. There is currently no cure.
