It's been two years since my last post. On July 2, 2010, I had a confirmation that I have a rare neurological disease called Multiple Systems Atrophy (MSA). When I asked , "Is it time to get my affairs in order. My neurologist said, "Yes". It was on July 2, 2007 that I blogged about my recent fibromyalgia diagnosis. It's weird that I still am in denial and think I've been misdiagnosed.
What is MSA?
Multiple system atrophy (MSA) is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure such as fainting spells and bladder control problems, combined with motor control symptoms such as tremor, rigidity, and loss of muscle coordination.
Cure? There is no cure for MSA. Currently, there are no treatments to delay the progress of neurodegeneration in the brain. But there are treatments available to help people cope with some of the more disabling symptoms of MSA.
Prognosis? The disease tends to advance rapidly over the course of 9 to 10 years, with progressive loss of motor skills, eventual confinement to bed, and death. There is no remission from the disease. There is currently no cure.
Not good.
Sunday, July 25, 2010
Thursday, June 19, 2008
Family
My son, his wife, and two daughters are visiting from across the USA. This is their first time visiting my home in 5 years, and we are hosting a huge open house of their military friends, college buddies and his high school friends. There are lots of kids running around the house, chasing lighten bugs. It’s a hoot. Tomorrow, we all leave for a family wedding 3 hours away with 4 generations attending. Our youngest (daughter) will be introducing her serious boyfriend to some more people in the family. Our middle child (daughter) is hosting the clan after the wedding.
How do I feel? I actually cried today because I had PD. At 58, I am functioning much older. I work hard to keep up, and allow people to help me, but hell I just want things to be back when I could keep up with all this. The women in my family are hardy into the 80s. I fear the worst of both worlds, living to my 80s and being helpless. I have an endless number of people telling me how good I look, how much better I move now, how great it is that I do all the things I need to do, but still PD sucks.
How do I feel? I actually cried today because I had PD. At 58, I am functioning much older. I work hard to keep up, and allow people to help me, but hell I just want things to be back when I could keep up with all this. The women in my family are hardy into the 80s. I fear the worst of both worlds, living to my 80s and being helpless. I have an endless number of people telling me how good I look, how much better I move now, how great it is that I do all the things I need to do, but still PD sucks.
Monday, June 9, 2008
Nazareth Catholic Orphanage - Raleigh NC
Nazareth Catholic Orphanage - looking for people who were here in 1956 to 1963
Saturday, March 29, 2008
New Diagnosis
I was diagnosed with Parkinson’s Disease on December 20, 2007. I've lost 30 pounds. My cholesterol is lower.
Monday, July 2, 2007
On the Road Again
A little about me.
I am turning 58 in a few days, am overweight, recently diagnosed with fibromyalgia (FM), and generally dragging myself around most of the time. It hasn't always been like this. Most of my life I was thin, in shape, and very active. About 4 years ago, after an operation, my health went south. I never regained energy and didn’t get back into exercise. And to make matters worst, I ate everything in sight. My weight was already suffering from menopause, but I gained way too much since then. It’s taken the doctors many months, lab test, body scans, and good 0l’ guessing to finally come up with FM. I need to loose weight, eat better, and exercise. (Nothing new there). This is my forum for my journey. I need to journal my successes and struggles, try on things. Actually, I am still in denial. I think I’ve been misdiagnosed. :)
I am turning 58 in a few days, am overweight, recently diagnosed with fibromyalgia (FM), and generally dragging myself around most of the time. It hasn't always been like this. Most of my life I was thin, in shape, and very active. About 4 years ago, after an operation, my health went south. I never regained energy and didn’t get back into exercise. And to make matters worst, I ate everything in sight. My weight was already suffering from menopause, but I gained way too much since then. It’s taken the doctors many months, lab test, body scans, and good 0l’ guessing to finally come up with FM. I need to loose weight, eat better, and exercise. (Nothing new there). This is my forum for my journey. I need to journal my successes and struggles, try on things. Actually, I am still in denial. I think I’ve been misdiagnosed. :)
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